The Autism Handbook
Support, Funding and Services accessible to families residing in Marmora and area
By: Holly Hoekstra
Suspecting that your loved one may have an Autistic Spectrum Disorder can be overwhelming. Having your loved one diagnosed with such may seem to be devastating to some, yet may come as a relief to others. Receiving such a diagnosis is not where the journey ends but rather where it truly begins. Your child will benefit tremendously from intervention and has the potential to make awesome strides ahead. Goal setting, respite assistance, developmental support, therapy services, funding services and parent/family support can help to unlock unimaginable potential and build on or help discover gifts and talents in your loved one and perhaps in yourself. If you live in the Marmora area, this booklet contains a list of some resources that may offer assistance in acceptance, love and advocacy, as well as accessible supports and therapy services, plus funding options.
Autism is
Accessing Unlimited Talent and Insight in Special Meaningful* people.
Dedicated to my Jiggs AKA Cheeks
Speech Therapy, OT, PT, Sensory Integration, Play Therapy, Floor Time, The "diet", Medication and Supplement Options, ABA/IBI, Family Support, fellowship and Recreation – All key in ASD
*.*Acronym and slogan property of Holly Hoekstra Copyright 2009
Recreational Services
4H Club – Stirling
www.4-hontario.ca
Judy at 613-395-4491 or kupecz@xplornet.com
Or Beth at 613-395-4235
4-H Club focuses on having fun, making friends and on learning. Is open to boys and girls between 8 and 21 years of age. Offers skill development by completion of projects and fun Club activities. Members will have the opportunity to travel in Canada and beyond, plus they are eligible to apply for more than $25,000 in national scholarships.
Qunitra
173 McGee Road
Provides horseback riding instruction classes for people with disabilities.
Girl Guides of Canada
Centre Hastings Girl Guide Groups 1-800-565-8111
http://www.guidesontario.org/Unit groups meet weekly at various times and locations.
Mission Statement: "
Girl Guides of Canada-Guides du Canada is a movement of girls and women that challenges members in their personal development and empowers them to be responsible citizens."Eligibility:
Girls 5-18 years of age.
Marmora Library
37 Forsyth St., P.O. Box #340
Marmora, ON K0K 2M0
613-472-3122 marmoralibrary@gmail.com
http://www.marmora.biz/library/Hours: Tuesday: 10:00am - 5:00pm, Wednesday: 3:00pm - 7:00pm, Thursday: 3:00pm - 7:00pm, Friday: 10:00am - 5:00pm, Saturday: 10:00am - 2:00pm
Mission Statement: "The mission of the Marmora and Lake Public Library Board is to give all those who require and seek a forum for knowledge, information, and educational recreation, a chance to do so."
Services: Free Computer Access, Wireless internet access is also available, printing and Photocopying, Interlibrary Loans, Boating Exam, Newspaper Archives, Homework Club.
Membership is FREE to persons living in the Municipality of Marmora & Lake. Non-residents must supply ID and are required to pay a $10.00 non-refundable yearly fee. Members of Havelock, Madoc and Tweed Public Libraries may enjoy a reciprocal membership free of charge.
Tweed National Theatre
P.O. Box 847
Tweed, ON K0K 3J0
613-478-6178
Group dedicated to live theatre. Drama group, plays, acting, sketch, music. Anyone can join. Positions other than drama include: makeup, costume, props, and set construction.
Circle Square Ranch
Circle Square Ranch
1361 Price Road R.R#3
Arden, ON
K0H 1B0
Phone: 613-335-5403
Fax: 613-335-3622
arden@csranch.ca
Circle Square Ranch is a part of Christian Crossroads Family of Ministries. Arden is one of nine Circle Square Ranches located across Canada. Arden Circle Square Ranch provides a high impact on life.
Vision: "Circle Square Ranch is a Christian-based organization, operating non-profit camps that welcome children and youth of any faith and race. We encourage young lives to grow spiritually, mentally, socially, and physically in an exciting, fun-filled, western atmosphere. We invite campers to consider what the Bible has to say about them and their relationship with God and with each other. Everything we do - from the selection of our staff, to the programs offered - is done to have a positive input into each young life."
Programs: Summer camp, horseback riding, swimming, rock climbing, archery, canoeing, tubing, kayaking, trampoline, Skate Park, high ropes course. Also offered are seasonal activities for school, family, and community groups.
Eligibility: Summer Camps vary by week and are designed for children 6-18 years old.
Fees: $445/week (Before April 30th), $485 (after April 30th), Discounts available as well as subsidy.
Madoc Community Pool
R.R. # 5
Madoc, Ontario KOK 2KO
Phone: 613-473-4994
Fax: 613-473-5444
Hours: Open Middle of June to end of August
Mandate: "Promote participation in such sports, recreational, and cultural activities that enrich the Community"
Programs: Public Community Swimming Pool, Full Red Cross Instructional Swim Programs., Aqua-fit.
Cost: Fees vary.
Madoc Skate and Water Park
11379 Highway #62
R.R. #5
Madoc, ON
K0K 2K0
613 473-4030
www.centrehastingspark.com/Hours: 8:30 a.m. - 4:00 p.m. Monday – Thursday and 8:30 a.m. - 1:30 p.m. on Friday
Services: Skate/bike park and play park equipment, canteen. Water Park (to open summer 2009). The park is supervised from May to Thanksgiving weekend. Offer equipment rentals such as BMX bikes, K2 Rollerblades, and skateboards at $5 per hour. Daily can be arranged.
Family Space
Family Space Quinte Inc.
301 MacDonald Ave
Belleville ON K8N 3Z3
Tel: 613 966-9427
Toll: 800-952-2279
Fax: 613 966-8819
Email: Familyspace@blvl.ign.net
www.familyspace.caEquivalent to Ontario Early Years Centre. Offers various free support, play groups and drop-in services. Play group every Friday morning at Marmora Public Library. Offers assistance in applications for funding.
Community Partners
41 Octavia St, Belleville
613 771-9659
A Non-Profit Co-Operative. Provide a program for parents, caregivers and their children; help stimulate healthy growth and development. Various support programs and play groups.
YMCA Belleville
YMCA of Belleville and Quinte
433 Victoria Avenue
Belleville, ON K8N 2G1
613-962-9245 (Tel)
613-962-9247 (Fax)
Hours: Monday – Friday 6:00am – 10:00pm. Saturday 7:30am – 5:30pm, Sunday 9:00am – 5:30pm
Offers various programs including day camp and childcare, swimming, exercise etc.
Mission Statement: "Our YMCA is a charity, open to all, dedicated to service to others and to providing opportunities for growth in spirit, mind and body."
Fees: $28 - $72 per month. Financial assistance available
O`Hara Mill Pioneer Village and conservation Area
2061 Old Hwy 2
Belleville, ON
613-968-3434 Ext 105
Open in June, July, August
Protects and promotes O’Hara Mill Pioneer Village with 8 buildings that can be visited plus 83 acres of conservation and park
Support Services
Links to Learning Resource Centre
188 Victoria Ave, Belleville, ON
(613) 968-8700 or
ldlinks@hotmail.com www.linkstolearning.caOpen Monday 4:00pm – 7:00pm, Wednesday 10:00am – 1:00pm, Saturday 1:00pm – 4:00pm
Links to Learning Mission Statement: "Links to Learning Resource Centre is a non-profit organization that assists families and professionals to find resources and information on disabilities."
Carries an assortment of books and files on disabilities, resource information as well as toys that can borrowed.
Small annual membership fee required.
Centre Hastings Parent Group
Office: 12 Moira Street East
Belleville, Ontario, Canada • K8P 2R9
Free support group for parents of children with various disabilities. Offers counselling, advocacy, support and fellowship. Meetings are held monthly in Marmora. Contact Sue Dilts.
Autism Parenting Network
Family Space Quinte Inc.
301 MacDonald Ave
Belleville ON K8N 3Z3
Tel: 613 966-9427
Toll: 800-952-2279
Fax: 613 966-8819
Email: Familyspace@blvl.ign.net
www.familyspace.caFree support group offering support and networking for those who love someone with an ASD. Monthly meetings take place at Family Space. Contact Julie London
Parent-child Clinic
Belleville General Hospital
245 Dundas Street East, Belleville, ON K8N 5K5
969-5511/969-7400 ext 2691
Fax: 961-2513
Hours: Monday to Friday 8:30am-4:30pm
After hours appointments available based on need
Clinic serves children with behavioural, emotional, social, developmental, or family issues. Also provided are specialized services to children with childhood autism, attention deficit disorder, oppositional/defiant disorder, conduct disorder, and dual diagnosis.
Programs/Services: Psychosocial assessments, Social Skills Program, Individual, Family, and Play Therapy, Transdisciplinary Play Based Assessments, Separation & Divorce Groups for Parents & Children Parent & Sibling. Consultations and education provided.
Kerry’s Place Autism Services
34 Berczy Street, Suite 150
Aurora, Ontario L4G 1W9
(905) 713-6808
bscott@kerrysplace.org
Mission Statement: "Kerry’s Place Autism Services is committed to enhancing the quality of life of individuals with Autism Spectrum Disorder, through innovative personalized supports, expertise, collaboration and advocacy."
Services offered in Hastings, Prince Edward, Lennox & Addington, and Frontenac Counties for Residential Program, Community Outreach, and Respite.
Autism Ontario
12 Moira St. E. Belleville, ON K8P2R9
Phone: 613-922-3185
andrea.doucette@csbd.on.ca
http://www.autismontario.com/
Vision: "Acceptance and opportunities for all individuals with Autism Spectrum Disorders"
Mission Statement: "To ensure that each individual with ASD is provided the means to achieve quality of life as a respected member of society"
Autism Ontario focuses in advocacy and support, research, best practices, government regulations and public awareness. It is one of the largest collective voices representing the Autism Community.
Members are connected through a volunteer network of Chapters throughout the Province of Ontario. Autism Ontario supports 30 chapters in Ontario and is run by committed volunteers and parents.
Membership is $50/year.
QCTC Quinte Children’s Treatment Centre
Cavell Building
245 Dundas Street East
Belleville, Ontario K8N 5A9
Phone: 613-969-7400 Ext. 2247
Fax: 613-968-9154
Email: info@quintectc.com
Mission Statement: "To provide a range of rehabilitation services and programs to children and youth with multiple disabilities, residing in Hastings and Prince Edward Counties. Each child is viewed as part of a larger network, with home, school, hospital and community partnering to establish goals and produce change. Our centre will serve as a primary resource for information and advocacy in our community."
Values: "We are committed to a family-centered model of care which involves parents and caregivers, as well as the child in all aspects of decision making."
"We believe in a flexible, multidisciplinary approach to intervention which meets the changing physical, cognitive, and emotional needs of children as they grow from infancy to young adulthood."
"We endeavour to provide timely intervention which is accessible to all our clients."
"We value successful, cooperative partnerships in our community and will continue to promote these linkages."
"We will endeavour to attract and maintain a high quality health care team by providing opportunities for education and research."
Services: Offers a range of rehabilitation services to children and youth with multiple disabilities, residing in Hastings and Prince Edward Counties. Such as, Occupational Therapy, Physiotherapy, Psychometric, Social Work, Speech and Language, Medical Services (Orthopaedic etc.). SOME SERVICES ARE AVAILABLE IN AT OFFICE IN MADOC.
Eligibility: Must be referred by Doctor. Must require either physiotherapy or occupational therapy in order to access speech and language, social work, and psychometric services.
Preschool children with only speech and language concerns may be referred to the Preschool Speech and Language Program by calling 613-969-7400 ext 2249.
Madoc Nursery School and Daycare
109 Elgin St.
Madoc, ON
613-473-5261
Provides nursery and care for children 6 weeks – 12 years of age.
Hastings and Prince Edward Counties Health Unit (HPEC)
179 North Park St
Belleville ON K8P 4P1
Tel: 613 966-5500
Fax: 613 966-9418
Madoc Office
108 Russell St. North
Tel: 613 473-4247
Mission Statement: "To enable the people in Hastings and Prince Edward Counties to achieve and maintain optimal health through health protection and promotion as well as disease and injury prevention."
Respite Services.com
"respiteservices.com consists of agencies funded by the Ministry of Community and Social Services and the Ministry of Children and Youth Services. We are collaborating to develop a more dynamic respite network for both children and adults in the counties of Hastings, Prince Edward and Lennox and Addington."
Online roster of caregivers who are looking to provide respite care and families looking for respite providers.
Community Advocacy & Legal Centre
158 George St., Belleville ON K8N 3H2
Tel: 613 966-8686
Toll Free: (877) 966-8686
TTY: 613 966-8714
Fax: 613 966-6251
Madoc Office: 108 Russell St. Madoc, ON, K0K 2K0
613 473-4839
www.communitylegalcentre.caHours: 9:00am - 5:00pm
A non-profit community legal clinic that provides free legal information, advice, assistance and representation to people living on a low income in Hastings and Prince Edward Counties, Provides help with tenant rights and obligations; Welfare and Ontario Works; Ontario Disability Support Plan; government pensions; Workplace Safety and Insurance; Employment Insurance; criminal injuries compensation; human rights; employment and refugee rights.
Counselling Services of Belleville and District (CSBD)
12 Moira St, E. Belleville
Tel: 613-966-7413
Fax: 613-966-2357
Hours: 8:30am - 4:30pm
A non-profit charitable organization, CSBD is a community based resource agency responding to the need for assessment, counselling, advocacy and support.
"We strive to enhance the effectiveness and well-being of persons of all ages, families and the community. CSBD strives to work collaboratively with collateral agencies and the community as a whole to ensure the most effective and beneficial support is provided"
Programs: Family Resource and Support, Adult Protective Services, Behavioural Consulting Services, Infant Development, the Home Personnel and Resource Program, Family Court Clinic, Supervised Access Services and Individual, Marital and Family Counselling Program. Offers assistance in applications for funding.
Service Fees: Fees for Individual, Family and Marital counselling only.
Children's Mental Health Services (Belleville)
161 Bridge St. W
Belleville, K8N 5V1
Tel: 613 966-3100
Fax: 613-966-2744
www.cmhs-hpe.on.caMadoc Office: Tel: 613 473-1685
Hours: 8:30am - 4:30pm
Children's Mental Health Services provides a range of counselling/assessment services for children and their families who are residents of Hastings and Prince Edward Counties.
Wait list for services. Can self refer.
Adopt a Child Coat Program
Central Hastings
613-478-1211
Assists working families in Central Hastings with new children’s outer ware.
Komputers for Kids
41 Octavia St.
Belleville, ON
613-966-8032 ext. 2377
Hours: Monday, Tuesday, Thursday 10:00am – 4:00pm
Provides computers to school aged children for free. Wait list of 8 – 10 weeks
Omni Learning Centre
350 Dundas St. W.
Belleville, ON
613-962-2755
Hours: Monday – Friday 8:00am – 4:30pm
Licensed ˝ day inclusive preschool program for children 2 ˝ - 5 years. Morning and afternoon classes. Free to deaf or hard of hearing children referred from Sir James Whitney School. Uses ASL in all classes.
Epilepsy Kingston and Area
100 Stuart St.
Kingston, ON
613-542-6222
Hours: Monday – Friday 9:00am – 4:30pm
Offers support meetings and client services.
Fees: $10 membership
Wee Care With Kids in Mind
RR#5
12911 Madoc, ON
613-473-4188
Catalogue custom order business of sensory weighted items such as pillows, blankets, as well as textured items for use with those with sensory differences (Sensory Processing Disorder).
** It is important to note that several support services such as Speech Therapy, Occupational Therapy, Physical Therapy, Sensory Integration Therapy, Play Therapy, Floor Time Therapy as well as ABA/IBI have considerable wait lists – some are 2+ years long. Private service providers are available in the Marmora area in such interventions as Speech/Language Therapy, Sensory Integration Therapy, Play Therapy, Floor Time Therapy as well as ABA/IBI – these private therapy lists are available from Quinte Children’s Treatment Centre, Counselling Services of Belleville and District as well as Links To Learning Resource Centre.
Funding Options
Access Centre for Hastings and Prince Edward Counties - Assistive Devices
Assistive Devices Program (ADP)
5700 Yonge Street, 7th Floor
North York, ON M2M 4K5
1-800-268-6021
Fax: (416)327-8192
Hours: Monday to Friday 8:30pm-5:00pm
Offering help to people who have long-term physical disabilities with such things as equipment etc. May pay up to 75% of the cost of assistive items such as, orthopaedic braces, wheelchairs, hearing aids, breathing aids etc.
Services: Categories of equipment costs that may be covered by ADP are Communication Devices, Diabetes Supplies, Enteral Feeding Supplies, Hearing Devices, Orthotic Devices, Ostomy Supplies, Prosthetic Devices, Visual Devices, Pressure Modification Devices, Respiratory Devices, Wheelchair, Positioning, and Ambulation Aids.
SSAH (Special Services At Home)
Ministry of Child and Youth Services
11 Beechgrove Lane
Kingston, Ontario K7M 9A6
Tel.: (613) 545-0539
Fax: (613) 536-7272
Toll Free: 1-800-646-3209
TTY: (613) 536-7304
Funding program that helps families who are caring for a child with a disability or caring for an adult with a developmental disability.
Funds assist families in paying for special services in their home or outside as the child is not being supported in a residential program.
Funds can be used to help in learning new skills and abilities i.e. communications skills, ADL’s, respite etc.
Eligibility depends on the services already being received. Must have a developmental disability, live in Ontario, are in need of support
To apply, complete the application form at
www.gov.on.ca/children/english/programs/needs/services/index.html and mail to local office.** There is a very long wait list for this type of funding.
Easter Seals Society of Ontario
Kingston Office
304-863 Princess Street
Kingston, ON K7L 5N4
Phone: 613-547-4126
Fax: 613-547-1608
Toll Free: 1-888-667-0043
Mission Statement: "Easter Seals Ontario is dedicated to helping children, youth and young adults with physical disabilities achieve their full individual potential and future independence. Easter Seals funds disability solutions through financial assistance, summer camp, the Recreational Choices Funding Program, research, advocacy, and public and consumer education."
Programs: Camp and Recreational Choices Program, Direct Financial Assistance, Feature Scholarships, Incontinence Supplies Grant Program
Eligibility: All children must first be registered with Easter Seals to access Easter Seals service and support programs. Must be a legal resident of Ontario, hold a valid Ontario health card and be under the age of 19 years and have a physical disability that impairs/impacts on their mobility (e.g. Cerebral Palsy)
An Application must be completed by an Ontario Doctor.
Ontario Disability Tax Credit Certificate
T2201
People who have physical or mental disabilities that are severe can use this form to apply for the disability amount on their income tax returns. This credit is retroactive.
Ministry of Community & Social Services Ontario Disability and Support Program (ODSP)
199 Dundas St. East
Belleville ON K8N 1E2
613 962-9562
(800) 267-4355
Hours: 8:30am - 4:45pm
ODSP is a provincial government program which provides income and employment supports to eligible persons with disabilities. Persons must qualify financially and be considered disabled under the Ontario Disability Program Act. Employment support is available to disabled persons who desire to pursue their employment goals.
ACSD Assistance for Children with Severe Disabilities
11 Beechgrove Lane
Kingston, Ontario K7M 9A6
Tel.: (613) 545-0539
Fax: (613) 536-7272
Toll Free: 1-800-646-3209
TTY: (613) 536-7304
/www.gov.on.ca/children/english/programs/needs/disabilities/index.html
Assistance for Children with Severe Disabilities program helps offset extra costs families incur caring for a child who has a severe disability. May help pay for travel to doctors and hospitals, special shoes and clothes, parental relief, wheelchair repairs, assistive devices, hearing aids, hearing aid batteries, prescription drugs, dental care and eyeglasses.
Pays $25 - $430 per month
Eligibility: Resident of Hastings, Kingston/Frontenac, Lanark, Leeds & Grenville, Lennox & Addington, Prince Edward Counties. Parent or legal guardian caring for a child with a severe disability, you may be able to receive some financial help. Child must be under 18 years old and live at home, with a severe disability. Based on income and severity of disability. Contact Office for application.
Children’s Wish Foundation
The Children’s Wish Foundation of Canada
350 - 1101 Kingston Rd, Pickering, ON, L1V 1B5
Tel: 905-839-8882 Fax: 905-839-3745
1-800-700-4437
Offers financial assistance to make one’s wish come true. Must be considered to have a high risk illness/disability.
Eligibility: Children 3 years to 18 years. Must be legal residents of Canada and have an illness, which is considered as a high-risk/life threatening.
P/C Children’s Charity
Ontario, Western & Atlantic Canada
1 President's Choice Circle
Brampton, ON L6Y 5S5
1.877.525.4762
P/C Charity is dedicated to helping children with physical or developmental disabilities.
Mission Statement: "Our aim is to remove some of the obstacles that make everyday living extremely difficult and make it a little easier for the child or family to cope with the disability. We provide direct financial assistance in the purchase of expensive mobility equipment, environmental modifications, and physical therapy and more."
Eligibility: child with a physical or developmental disability under 18 years, in need of assistive equipment or an environmental modification or therapy. For form: http://www.presidentschoice.ca/DocDownloads/EN/PC_Childrens_Charity_form.pdf
Jennifer Ashleigh Foundation
10800 Concession 5
Uxbridge, ON L9P 1R1
(905) 852-1799
Fax: (905) 852-0124
Email: generalmail@jenash.org
http://www.jenniferashleigh.org/#Mission Statement: "To improve the quality of life for seriously ill children and their families… "when love is not enough."
Provides emergency financial relief, Respite for a pre-determined period of time, Developmental therapies (excluding Hyperbaric Oxygen, ABA, IBI or RDI therapy), Educational programs, materials, instruction, Specially adapted computer equipment and software, Medical treatments not covered by government health plans or insurance, Recreation that promotes a child's involvement in the community.
Eligibility: Children who are seriously ill or have a permanent disability. Must be less than 21 years of age and reside in Ontario. Family income impacts on assistance decisions. To apply, call (905) 852-1799 and ask for a Request for Assistance form. Form may be completed by parent, physician, therapist, social worker, teacher or community liaison.
United Way Quinte
PO Box 815, Belleville, ON K8N 5B5, Physical address: 249 William Street, Sears Unity
Belleville, ON
K8N 3K4
Telephone: (613) 962-9531
Fax: (613) 962-4165
office@belleville.unitedway.ca
www.belleville.unitedway.ca
Offers financial help to families under stress need, youth at risk, vulnerable people in isolation and facing difficult daily challenges as well as women and children living in violent environments etc.
There is a list of 50 current Funded Agencies working with the United Way of Quinte. Please see their website for a detailed list.
Mission Statement: "I believe in my community. I believe that its success depends on the people who live in it. That everyone has something to contribute. That everyone deserves respect. That everyone's potential can be realized. That diversity is vital. That every person has value. That everyone needs help and everyone can offer help. That a safe, supportive community is everyone's responsibility. I believe in possibility."
References
Autism Ontario. 17 April 2009.
<http://www.autismontario.com/>
Centre Hastings Park. 17 April 2009
<http://www.centrehastingspark.com/Services.php>
Children’s Wish Foundation. 28 March 2009.
< http://www.childrenswish.ca/index_2007.php/en/welcome>
Easter Seals Ontario. 17 April 2009.
<
http://www.easterseals.org/services/>Hoekstra, Holly. Centre Hastings Community Supports and recreation Guide. Marmora: Hoekstra, 2009.
Kerry’s Place.
16 April 2009.<
http://www.kerrysplace.com>Links to Learning Resource Centre. 16 April 2009.
<
www.linkstolearning.ca>Volunteer and Information Quinte. Community Keys. Belleville:
JB Printing, 2006
4-h Canada. 17 April, 2009.
<
www.4-h-canada.ca>